Education & Resources

The Child Neurology Foundation serves pediatric patients with neurologic disorders through advocacy, education, research, and support initiatives. Their website has a wealth of helpful information about neurologic disorders throughout childhood into adulthood, resources, and information about clinical trials.
www.childneurologyfoundation.org/patients-or-caregivers

The Disorder Directory is a great starting point to learn about different disorders from experts as well as to find disorder-specific resources.
www.childneurologyfoundation.org

Specific conditions

Brain and Spinal Cord

Great informational teaching site from concussion to more severe brain injuries.

www.vivacare.com/childneurologysolutions/HealthTopic/Brain_and_Nervous_System

www.brainline.org

Abusive head Injury

www.childneurologyfoundation.org

Brain Tumors

Excellent starting point to learn about brain tumors and treatment options.
www.cancercenter.com

Chiari Malformation

www.conquerchiari.org

Encephalopathy

Article from MedicineNet.com

Epilepsy Foundation

www.epilepsy.com

Hydrocephalus

Excellent website that has many helpful resources for parents as well as a comprehensive knowledge section that includes extensive review of management of hydrocephalus, shunts and complications.
www.hydroassoc.org

Neurology Glossary

www.vivacare.com/ChildNeurologySolutions/HealthTopic/Neurology_Glossary

National Headache Foundation

www.headaches.org

Neuroscience for Kids

Although created for kids and teachers, these are very helpful websites for all ages.

Brain organization – https://faculty.washington.edu/chudler/nsdivide.html

Autonomic nervous system – https://faculty.washington.edu/chudler/auto.html

Pediatric stroke

www.strokeassociation.org

Post-head injury autonomic problems

www.medscape.com/article/325994-overview

Resources and support

Minnesota Brain Injury Alliance

Minnesota Brain Injury Alliance is a nonprofit dedicated to providing advocacy and direct service to individuals affected by brain injury.

2277 Highway 36 West,
Suite 200 Roseville,
MN 55113-3830
Phone: 612-378-2742
Toll Free: 1-800-669-6442
Fax: 612-378-2789
Email:info@braininjurymn.org
URL: www.braininjurymn.org

PACER

Nonprofit providing education and advocacy for children with disabilities.

Minnesota: 1.800.537.2237 or 952.838.9000
USA: 888.248.0822
Fax: 952.838.0199
PACER Center, Inc.
8161 Normandale Blvd.
Bloomington, MN 55437

URL: www.pacer.org

Kane Education Law

Margaret O’Sullivan Kane is an expert in educational law, based in Saint Paul, MN

1032 Grand Avenue Suite 202,
Saint Paul, MN 55105
Phone: 651 222-8611
URL: www.kaneeducationlaw.com

Simon Technology Center

A part of PACER, the Simon Center is a tremendous resource for assistive technology to help children with disabilities participate more independently whether at home or school. Along with getting a technology assessment, there are other resources as well including a lending library and individual training sessions.

8161 Normandale Blvd.
Minneapolis, MN 55437-1044
Phone: 
952-838-9000
Fax: 952-838-0199

URL: www.pacer.org

 Other Resources

If your child may need to go to the emergency department or get admitted to the hospital or you sometimes use out-of-home respite services, please complete the following form.  It can be very helpful in making these stays as comfortable as possible for your child.  It was created by EA Perkins (My Health Passport for Hospital/Clinic Visits, 2011).

Please take a look at the Simon Technology Center resource list for clinical care, technology resources, conferences and even links to online stores for assistive technology devices and toys
http://www.pacer.org/stc/links.asp